Novice

Dan redkih bolezni

Danes 28.2.2021 je dan redkih bolezni, vzemimo si trenutek iz vsakdanjega življenja, da
Vse novice

Webinarji

WDO ( World Duchenne organizacija) je organizirala spletni seminar o COVID-19 in o pacientih z DMD/BMD
Spletni seminar na temo COVID-19 in DMD/BMD 2.del
Kako vpliva Covid-19 na otroke z živčno - mišičnimi motnjami
V mesecu oktobru je potekal spletni seminar o razvoju genske terapije SRP-9001, ki jo razvija farmacevtsko podjetje Sarepta Therapeutics
Spletni seminar : Cepljenje COVID-19 in DMD Kaj morate vedeti!?
Teen & Young Adult Trial Participation in Duchenne - Industry & Community Perspectives - 2020
Update on Investigational Suvodirsen in Duchenne Muscular Dystrophy - Dec 2019
Caring for the Caregiver - February 2019
Vamorolone Clinical Trials in Duchenne - January 2019
Translarna® (ataluren) Development Update - January 2019
The Heart of the Matter - PPMD's Research Priorities (December 2018)
HOPE-2 Duchenne Clinical Trial – Capricor – July 2018
Roche/Genentech Anti-Myostatin Adnectin RG6206 in Duchenne - May 2018
Introducing PPMO – Sarepta Therapeutics – May 2018
NS Pharma's Exon 53 Skipping Program Update - April 2018
Pulmonary Care in Adults with Duchenne - March 2018
Positive Data from Summit's PhaseOUT DMD Ezutromid Clinical Trial - February 2018
Italfarmaco Provides Givinostat Update - January 2018
Accessible Gaming Webinar
Vamorolone (VBP15) Clinical Trials in Duchenne - January 2017
Summit's Utrophin Modulation Program - January 2017
Mission DMD: FibroGen’s Anti-Fibrosis Program - February 2017
MoveDMD Trial: Catabasis Provides Update - February 2017
NS Pharma's Exon 53 Skipping Program: Trial Recruitment & Update - February 2017
Idebenone Clinical Trials in Duchenne - March 2017
Akashi Provides Update on HT-100 - March 2017
Givinostat in Duchenne - April 2017
Results from Phase I/II HOPE Clinical Trial of CAP-1002 - April 2017
Nationwide Children’s Hospital Carrier Study - May 2017
Gene Therapy for Duchenne - August 2017
PART 2: Gene Therapy for Duchenne - Nationwide Children's Hospital - September 2017
Wave Life Sciences - November 2017
Understanding Gene Therapy, Part 3 - Galgt2 and Dup2 - December 2017

Raziskovalni članki

Koristne povezave

2017 - DMD Slovenija. Vse pravice pridržane.