Tudi letos je potekala XVIII Mednarodna konferenca o Duchennovi in Beckerjevi mišični distrofiji, ki jo je organizirala organizacija Parent Project. Potekala je preko aplikacije Zoom in sicer od 17.2.2021 do 21.2.2021.
Tukaj najdete povezave raznih predavanj, ki so bila predstavljena na letošnji spletni konferenci:
Advanced therapies: expectations and reality
https://www.youtube.com/watch?v=Sh-t2iUXNpY&t=691s
Presentation of the new video animation “What are clinical trials?”
https://www.youtube.com/watch?v=GH1QGFh6aiU
Addressing dystrophin production: from DMD/BMD diagnosis to gene therapy
https://www.youtube.com/watch?v=GH1QGFh6aiU
Naslednje teme ; Psychological aspects in the communication of diagnosis: the family perspective, Genetic matters in Psychological aspects of the transition from childhood to adolescence: the family perspective si lahko pogledate na naslednji povezavi:
Clinical and Drug managment: present and future
https://www.youtube.com/watch?v=nhvvGQM1q6g
Family guidelines and TRIALS for BMD
https://www.youtube.com/watch?v=UGkXEuREOQE&feature=youtu.be
Psychological aspects of adult life: the patient perspective
Heart and lung function
https://www.youtube.com/watch?v=1maykLVrkEE&feature=youtu.be